Mickey’s Recovery – Part II

If you are starting here, you might want to read Mickey’s story, parts III, and III, and her recovery part I.

When we left off, I had managed to recover enough to get a part-time job. I was still very much sick and tired, but had a small window of energy every day and figured that it would be best if I started using that for work. In the beginning I wasn’t capable of anything besides work – I would come home and go straight to my resting routine. My poor husband did an incredible job taking care of me during this time – he did all of the shopping, cleaning, and housework. I felt pretty bad about the situation but I needed the self-esteem boost I got from being able to work, as well as the money to pay off all of the medical debt I incurred over the course of my illness.

When I look back on that time I remember how tired yet sleepless I was. I was slowly getting more and more into the Paleo diet which I could tell was benefiting me, but the introduction of work stress was taking me a step back. Sleep was becoming very difficult; I would have trouble falling asleep, staying asleep, and waking up too early despite having deep fatigue and extreme tiredness. Given all of the gains that I had been making in my diet and nutritional status I was stumped. I decided that I was going to find a naturopath that was well versed in endocrine issues and knowledgeable about natural thyroid medication. I researched and found one, but she had a three month wait for an appointment. I figured I had been on my healing journey so long that three months was not going to kill me, especially to see someone good.

In the months that I waited to see her, I really dialed in my diet. I read the work of Weston A. Price and got into making bone broth and fermented veggies. I started eating liver (although I had to make my husband handle and cook it!). This is when I discovered the Autoimmune Protocol, and although I didn’t go for it straight away, I started noticing which of the foods on the list were obviously affecting me. I did a little trial just for eggs, and found that I was having a negative reaction to them. I continued on, learning more about how to listen to my body and find out which foods were making me healthy and which ones were slowing down my progress.

By the time I got in to see the naturopath, I had made a lot of gains in the energy department and was able to do more housework in addition to working. It felt good to be seeing a practitioner not being in a super desperate, sick state. In the first visit, she ordered a salivary cortisol test, neurotransmitter test, and thyroid testing. The results from this showed that I had wonky cortisol (high in the morning and night but super low during the day), massive neurotransmitter deficiencies (serotonin, gaba, epinephrine) and was in need of thyroid medication. Gradually, she put me on two neurotransmitter support supplements (mostly amino acids), rhodiola rosea and lifestyle changes for the cortisol and a small dose of Naturethroid.

Finally, after about a month of implementing and adjusting to this plan I was feeling great. The neurotransmitter support was enabling me to sleep amazingly well, and I found the effects of that fixing so many of my other problems. Even though previously some nights I had gotten plenty of sleep, the quality was poor and I would wake up feeling unrefreshed. With the supplement, I was sleeping like a rock and waking up energized and refreshed – something I had never felt before. Although I was started on a low dose of natural thyroid, I felt warmer and less tired. Around this time I also committed to the Paleo Autoimmune Protocol, and was able to identify which foods caused my symptoms to worsen.

This past summer was amazing. The combination of actually feeling healthy and the excellent northwest weather gave me a huge boost. One thing that I had become weary of since becoming sick was traveling, with my restricted diet and whatnot. At the end of the summer I had two vacations planned, a family reunion in Oregon and a wedding in California. I stressed out a lot in planning for these trips, but in the end they turned out fine (I might even go as far to say that they were fun and relaxing!). We opted to drive in both occasions, and I brought lots of food with me and cooked most places we stayed. Everyone who had seen me the year before at my sickest was amazed at how my health had transformed and wanted to hear my story. I got comment after comment about how good my skin looked, and how I had my spark back. It was really nice to see other’s perspective on my journey, because sometimes you can’t see a difference when the road has been so desperately long.

As for where I am at now, I would say it is a very good place. I am able to cook for a living which brings me incredible joy, and I also just started studying nutritional therapy through the Nutritional Therapy Association so that my cooking can be more well informed by nutrition. Now that I have added schoolwork into the mix, I can find myself struggling to keep up with the lifestyle changes that helped me heal my adrenals (sleep habits, walks, yoga, meditation etc). I have been strictly eating on the Autoimmune Protocol, although I have found that things like egg yolks and soaked nuts don’t bother me. Still, I am doing a little extended experiment to see if I can experience even more gut healing through the protocol. I still suffer regularly from some pesky Hashimoto’s symptoms – brain fog, internal trembling, neuropathy, fatigue, and coldness. I am hoping through supporting my body with the right diet and lifestyle changes as well as working with my practitioners on supplementation and thyroid medication one day I can feel like a normal person – if I ever remember what that feels like when I arrive there!

November 2014 Update–I’ve had a lot of emails lately inquiring about how I have been feeling lately. I’m happy to report that I have considered myself fully recovered for over a year now–no obvious symptoms to complain about, my dosage of medication stable, and generally feeling productive and happy. I take hardly any supplements these days and still eat a modified version of AIP (I have been able to add in a few foods long-term). A new thing for me has been able to tolerate more exercise–I’ve been walking, hiking, and doing yoga on a regular basis without feeling trashed. I’ll always be aware of my autoimmunity, and the need to rest and be gentle on myself, as well as the need to feed myself a particular way, but I am happy to finally feel like my recovery has “settled” and confident there will be no regression as long as I keep up the lifestyle changes I know are important. 

About Mickey Trescott

Mickey Trescott is a co-founder here at Autoimmune Wellness. After recovering from her own struggle with both Celiac and Hashimoto’s disease, adrenal fatigue, and multiple vitamin deficiencies, Mickey started to write about her experience to share with others and help them realize they are not alone in their struggles. She is a certified Nutritional Therapy Practitioner by the Nutritional Therapy Association, and is the author of three best-selling books--The Autoimmune Paleo Cookbook, The Autoimmune Wellness Handbook, and The Nutrient-Dense Kitchen. You can watch her AIP cooking demos and get a glimpse of life on the farm by following her on Instagram.

146 comments

  • It never fails to amaze me the power our FOOD has over our lives. Going all your life with a seemingly complicated and incurable problem — only to discover you’d have been fine all that time if you were just not eating one little ingredient! Oh, how I sympathize. I really think nutritionists ought to be the doctors of the future. The more I learn, the more convinced I am that food is at the root of all illness and it astounds me that most of us go our whole lives without ever blaming our food for our chronic complaints. How lucky we are to have found our respective dairy and gluten triggers, at least!

    • So true! Elimination diets should be standard protocol for any chronic childhood illness. Fortunately today there are so many blogs and resources out there for children food allergies and a lot of moms are becoming more aware. I dream of the day where you go in to the doctors office to tell them you think you are allergic to dairy, and they suggest also getting tested for celiac disease and other common cross-reactive food allergies. That would have saved me 10 years of misery!

      • Leslie Rosenquist says

        Hi Mickey,

        I just purchased your paleo autoimmune cookbook. I am a 51 year old female who 3 years ago got very sick mono they thought and it lasted for almost a year and then I discovered I got fybromyalgia from it. Ugh the doctors put me on Lyrica
        and it seemed to really help until about 5 months ago I got the mono virus again and it was awful with my Lyrica medicine . I have painful glands and inflammation and I had to cut my fybro meds in half, my normal blood work comes out normal. For the last 5 months I can’t exercise and feeling like I have the flu. I have to rest and lay down as much as possible to try and get rid of it again

        • Mickey Trescott says

          Hi Leslie!
          I am sorry to hear about your struggles – a lot of us with autoimmune disease find we have recurring issues with viruses like Epstein-Barr (the one that is responsible for mono). I hope that getting on track with diet helps you recover, but I’d also suggest getting a functional medicine practitioner involved to help with further testing and treatment. Wishing you the best!

  • Rachel says

    Thank you 🙂

  • Dawg Ma says

    Waiting anxiously for the next installment ~ thanks for sharing.

  • Amely says

    I have also encountered similar events as you have detailed in your stories. Less severe, but same bouts. I am also told by the healthcare community that I am okay. However, I do have hypothyroidism and the doctor wants to do a brain MRI of my pituitary gland. He thinks there is something wrong with it. I myself have found that the lite version of paleo diet works for me along with the elimination of high salicylates and FODMAP related foods. leisure exercise/activities, although I have been more inclined to do indoor exercise activities due to environmental allergies. I feel aches and pains that come and go, but I have learned to manage and accept. I am interested to know how you manage your diet. THANK YOU, for posting your ideas and story.

    • Hi Amely,
      Thanks for the message! I had an MRI also, to check my pituitary as well as look for MS (both came out fine). My thyroid bloodwork comes back within all of the accepted ranges and I was denied treatment for a long time, until I found a naturopath that was willing to let me try a small dose of dessicated thyroid that has really helped. Paleo has been nothing short of a miracle for me, and over the last year have been tweaking as I find out more about the gut and how to better help mine heal. I also have a sensitivity to FODMAPs – I strictly avoided them for a couple of months, and now I can have small amounts of the lesser offenders without looking pregnant. I believe this to be because of SIBO instead of fructose intolerance since it is getting better with time, but I haven’t been formally tested so I don’t know.

      Managing diets with chronic illness is so tricky because we are all different, but one thing rings true – keep trying things until you find something that works for you, and don’t be afraid to stick with it. Nobody can know your body as well as you do, and I think the better a person can access that intelligence the better they are going to be at determining what to/not to eat. Good luck 🙂

  • Rachel says

    Thank you for sharing your story. I feel less alone knowing that you and others have gone through similar long, painful, arduous trials as myself. I’m looking forward to your recovery story.

  • Rachel says

    Thank you. This is inspiring. I’m more convinced that dropping animal protein is not going to help me.

    • Yes, I would say that those with autoimmune diseases are way more likely to have compromised digestion and gut health, making it even more essential that we get good animal fat and protein. I don’t eat chicken mostly because it doesn’t really have any nutrients I can’t get from fish (and the omega 3/6 ratio is far better with fish than with chicken). Red meat was key for me and I consider it a big healing part of my diet. Thanks for stopping by 🙂

  • […] If you are starting here, you might want to read my story, parts I, II, and III, and my recovery part I. […]

  • kate says

    Hi Mickey,
    I stumbled upon your story and am glad that I did. My experience has been really similar to yours, although I am still trying to find out what is going on with my thyroid… I have hypothyroid and celiac’s but no Hashimoto’s antibodies. I have a lot of the same problems with dizziness and low blood pressure, and cutting out gluten got rid of my headaches but I was really disappointed that I didn’t see much improvement otherwise. I have also been a vegan for years and have been struggling with the idea of adding meat into my diet. I have added fish but am so used to the idea that vegan is healthy, better for the environment and safe that it’s still really difficult. I might make a leap after reading your story though. Thanks!

    • Thanks for the reply Kate! Have you looked into adrenal fatigue? I was convinced that my dizziness and BP problems were due to my thyroid, only to find out that it was classic adrenal fatigue. The adrenals can also cause low thyroid function if they get bad enough.

      I was very surprised when I got my celiac diagnosis that going gluten-free didn’t have a better effect on me. I did an elimination diet and noticed that I had a horrible reaction to oats (gluten free ones!), quinoa, and sorghum. This was bad because I was eating a lot of gluten-free baked goods with these ingredients. It wasn’t until I eliminated all grains but rice that I noticed a big change. I have also read about foods that cross-react with celiac, and dairy is one of the biggest ones (also quinoa, coffee, and some others). Super frustrating, but something to consider looking in to!

      I could write forever about how I feel about going from being Vegan to Paleo (I’ll probably blog more about it at some point) but it was one of the biggest factors that led me to start studying nutrition. All of my beliefs as a vegan about how I was healthy because I did not eat meat were shattered when I actually started looking into the role that animal protein, good fats, cholesterol, and the fat-soluble vitamins play in the body. I believe that anything we eat, plant or animal can be unhealthy for a human and the planet if it is not raised with care. Our culture is so obsessed about grouping foods into categories of good or bad, cancer causing or not, when really it is about the origin and quality of those ingredients that makes a difference in how they act once they are in our bodies. I think adding fish is great, and you may be able to get the nutrition you are lacking just from that, although my experience was that red meat was particularly healing for me personally. Everyone is different! If my body was able to be healthy eating vegan, I would gladly still be one because I hate being responsible for animals suffering, but I no longer have that choice. Take care 🙂

      • kate says

        Hi Mickey, Thank you for responding to my comment, I really appreciate it. I never comment on blogs! I had my adrenals tested a while ago and my doctor was surprised that they were normal. So far since dealing with different diets the last couple years I’ve had a lot of improvement, but at this point I just kind of feel embarrassed that I don’t feel amazing like everyone expects, including my doctors. I sort of plateaued after improving some on thyroid hormone replacement and a diet free of gluten, soy and dairy but still have fatigue, nausea and dizziness that makes a huge impact on my life. When I do the elimination diets I have trouble detecting when a food affects me negatively. I never have violent reactions, I just always feel tired. When I accidentally ate gluten early on I didn’t feel anything, same with soy. Strange! I decided a couple weeks ago to try eliminating foods with possible gluten cross-reactions including all grains from my diet and am hoping maybe I’ll start to see changes again. I would eat vegan also if I could thrive on that diet, but it has become clear that I can’t either. I think being vegan can really become part of our identity and that can make giving it up so difficult. Well, Thanks so much for posting and giving me hope that I will continue to improve! I love your recipes.

  • Thanks for sharing your story. My own low point was about three years ago, and I’m finally getting close to whole health again. It’s hard to explain to people what is wrong with you when the main symptom is not being able to follow through with plans because you just don’t feel right. Before my low point, whenever I felt tired or sick, I would just have some coffee and a snack and “power through”. How do you convince a doctor that you know something’s wrong because you can’t power through anymore? 🙂

    Lately I find that I have reserve energy again, and it is extremely difficult to avoid the temptation to keep working on projects instead of stopping to leave enough time to cook meals. And in fact, I would like to be sleeping now, but the last item that I’m working to scratch off my Autoimmune Paleo list is coffee, and I’m riding high on the cup that I drank 14 hours ago. Every night it’s ,”no coffee tomorrow,” and every morning it’s, “just one more.” Did you have a hard time giving up coffee, and did you use anything to substitute when you had cravings? Or is it another just cold turkey addiction?

    • Been there – my symptoms so gradually crept up that I have a hard time figuring out when I started not feeling well. I too started relying heavily on coffee to keep me going. When I first moved to Seattle from California, I got a job at a coffee shop, and that was a bad idea. For three years I had a shifting schedule, sometimes opening the shop (being there at 4:30AM) or closing (until 11) other nights. That combined with a heavy coffee habit really got my rhythms off, and burned out my adrenals.

      One day I woke up and couldn’t tolerate coffee. I now know that it was an early stage of my thyroid disease, but it really freaked me out at the time. I went from being able to have 6 shots of espresso a day to one shot half decaf and would still be sitting there shaking after I drank it. Thats actually the thing that got me in the doctor’s office – not passing out, or my heart beating funny, or the horrible anxiety I was experiencing. But not being able to handle coffee? Boy, something had to be horribly wrong! Haha!

      From then on I did decaf for a couple of years, not being able to kick my ritual (and not knowing about AIP). When I started playing with the autoimmune protocol coffee was most definitely the last thing I cut out. It happened when I started getting on a serious bone broth and kombucha routine – eventually that replaced the coffee in the morning. Then when I would occasionally have a decaf in the morning, I would notice how I would have a hard time getting to sleep. I still fantasize about coffee, in fact I almost had one yesterday. My husband works in the coffee industry and we were at one of his company’s cafes, and I almost had one – but he knew better and got me a chamomile tea instead.

      Baby steps! 🙂

      • toni says

        So, was your thyroid disease without a doubt the cause of your sudden caffeine intolerance? I’m asking because I suddenly became caffeine intolerant this past December for no apparent reason and my gallbladder crapped out shortly after. I’m still having episodes of heart palpitations, anxiety, and nausea, although my stomach medicines (Carafate and Phenergan) do seem to help with these, so I have no idea what’s going on. My doctor checked my total T3 and T4 and TSH and everything was normal, although I’m now seeing a clinical pharmacist, who is testing me for adrenal fatigue, hormone imbalance, and is asking my doctor to check my free T3 and T4 to get a better idea of what’s going on (we found I have goiter a few months ago). Nobody has mentioned testing for antibodies, so I’m wondering if that’s something I should push for. Did you have a thyroid scan?

        • Mickey says

          Hi Toni,
          I believe it was from adrenal fatigue, not thyroid, but they are very related as the organs in the endocrine system all feed off of one another. I think the tests you are going in for will tell you a lot. You should have TPO antibodies as well to check for autoimmune thyroid. I did not have a scan because I did not have any nodules. Good luck!

          Mickey

          • Chris R says

            Hello Mickey,

            I’ve had brain fog, low energy and fatigue for a long time, and also addicted to coffee for many years.
            The past 9 months has been really horrible for me feeling exhausted and insomnia getting only 3-4 hours of sleep per night.

            The past 3 weeks, I finally found a functional medicine doctor who did blood work and adrenal tests and i have both hashimotos and adrenal fatigue similar to your story… he recommended your book which i’ve been following the past few weeks.
            Very tasty recipies i must say and i am learning how to cook real food now 🙂
            I am also on a number of supplements for my adrenals and thyroid, however sleeping is still rough for me.
            In your recovery blog you mentioned nuerotransmitter support helped your sleeping, any advice on what might have helped?
            …I feel like i’ve tried everything.

          • Mickey says

            Chris,
            I’m happy you found a good doc and are on your way to recovery! I actually had a very specific test by neuroscience that measured my urinary neurotransmitters, and the result was a custom amino acid supplement that helped supply the ingredients to make the neurotransmitters I was lacking.

            I haven’t taken that supplement in a couple of years now, mostly because I sorted out my MTHFR mutation treatment, which deeply affects neurotransmitters. I believe that this was my source of the imbalance in the first place.

            Have you tried all the lifestyle changes that impact sleep? Amber tinted glasses, stress reduction during the day, etc?

            I hope you figure it out soon!

            Mickey

  • Jill says

    hi I’m very much struggling with adrenal fatigue. Can’t get grass fed beef though. Low weight, brain fog, sluggish, heavy legs, poor digestion…I’m not paleo, but was never and am not a vegan. Lots of lower back pain too (kidneys? adrenals?). Insomnia. You name it , I got it. Not sure what to do…especially since I’m lower weight and cannot afford expensive food and supplements. Jeesh 🙁
    Low iron (very very low) and low vitamin D, etc. I cannot afford to lose weight. At all.
    I eat a ton of eggs, fats (avocados, olive and coconut oil), dark chocolate, yogurt, brown rice cakes, fruit, veggies, chicken , lots of fish, nuts, nut butters, flax, some protein powder (either hormone free whey or a brown rice gentle one), coconut milk, etc…
    I don’t know what to do. But I want to start feeling alive and RiGHT now 🙁
    My lower weight and energy is not cool..and my family wants me to gain (i’m 31, but they’re pressing). I’m not a cook and need SIMPLE. thoughts? You can email me . Thanks.!

    • Hi Jill,

      Sounds like you have lots going on! I have a couple ideas for you.

      First, my experience with adrenal fatigue is that you can go very far healing from it with lifestyle changes. The first thing you need to figure out is why you aren’t sleeping. For me, I got tested and found out it was from a serotonin deficiency – taking 5-htp made all the difference for me. It could be a different factor for you, which is why in this case it might be a good idea to see a practitioner. Once you can sleep, doing so for a long time (8-10 hours a night) in a completely dark room at the same time interval every day will help your body get back on a circadian rhythm. I know this sounds impossible for someone with insomnia, but it was my experience that nothing I did until I started sleeping properly was helping the adrenal fatigue. Next, you need to figure out how to de-stress and relax. Adrenal fatigue happens to people who are type A, stressed out and don’t slow down. I was in denial and didn’t believe I was one of these people, but I now know that most of my problem with stress in my own creation. Meditation and mindfulness exercises are amazingly effective. There are other things you can do for adrenal fatigue, but this is where I would start.

      As far as the nutritional deficiencies, I think with the low iron you really need to get some red meat into your body. Since you are on a budget, I would prioritize food items that have the nutrition you are looking for and go from there. I took care of my anemia by eating beef and beef liver. If you are sick and can’t afford grass-fed, get hormone-free, I believe that not eating the meat is going to make you worse than not eating the highest quality because you can’t afford it. I buy grass-fed beef liver at my farmer’s market for $4 a pound. Organ meats are not very desirable and inexpensive, and they happen to have way more nutrients than muscle meats. You can also buy the cheapest cuts of beef – they have more fat and are more nourishing. I would focus on buying red meat instead of whey/rice protein or chicken – neither of those are doing anything to heal your body. After you have your good protein and fat sources figured out, the trick to weight gain is the carbs. Although its not “paleo”, rice is cheap and effective for this purpose. My husband is in the same boat, very athletic and always needing to find more calories. I cook him a big batch of rice and sweet potatoes every week to supplement with the meat and veggies that I cook for myself.

      Lastly, be patient with yourself as healing takes time! If you stress out about not being where you want to, you fuel the adrenal fatigue which gets you right back where you started. I know it is hard because you want to feel better and not have to deal with this, but if you take it one day at a time with an attitude of acceptance you will have a much better time.

      Good luck, and let me know how it goes!

      • Jill says

        Thanks….but I have no hormone free stuff…its just the crap beef, so its pointless to buy and eat that….i can’t do that, its full of hormones.

        Another thing: my doctor wants me on remeron + zoloft (SEROTONIN)…i feel badly cause i’ve refused the last 2 years…IF i ‘d taken it maybe my body and life would be different…i’ve sunk REALLY low in life…BUT i’ve SO STUBBORN about antidepressants…i took 5-HTP a couple times, didn’t notice much…

        but if i’m not exerciseing, eating a ton of carbs freaks me out 🙁

        meal plans? I CANNOT lose weight u see
        and its too overwhelming to get rid of things

        i do smoothie in morning simply becuz i cannot stomach food

        i feel so regretful and lost 🙁
        ever see the book “are you tired and wired?”

        also…lots of lower back pain and CONSTANT left sided stitch…docs just say GAIN weight…

        also: for you r recipes, can you give serving sizes, thanks.

  • Mona Lebumfacil says

    Oh, yay! Thank you, girls , for sharing your stories! so good to know you are not alone! and also, so happy to hear others are having a hard time quitting coffee!!! I only drink one cup a day, but that has been absolutely definitely a “must”!! I am now trying out decaf, and I dont mind it, but I do feel that to heal my adrenal fatigue, and leaky gut properly, I need to quit coffee! that is my next step, and I am so inspired by your story, Mickey, so now I will do it!! thank you , and good luck on your own journey, I cannot wait for more AIP recipes!!!

  • bonnie says

    Gradually, she put me on two neurotransmitter support supplements (mostly amino acids), Hi Mickey, I am interested in which supplements amino acids you were given. I have sleep issues as you had described and would love to feel refreshed in the morning! My cortisol patterns are the same as yours as well.

    • Hi Bonnie!
      Did you have a neurotransmitter panel done when you did your cortisol test? That is the best way to tell which amino acid support will help you. Mine came up low on serotonin, GABA, and epinephrine. I take a product called Travacor which has 5-HTP, L-theanine and taurine with some co-factors (B6, C, folate, b12, magnesium, zinc and selenium). My naturopath suggested this product because of my specific test results and I was able to sleep again the first night I started taking it. I would highly recommend the test to see where your balance lies so that you don’t end up disrupting any other neurotransmitters. If that isn’t an option for you, you could try starting a low dose of 5-HTP. If low serotonin is your problem, that will most likely help you.

      Otherwise, I have found that working on my adrenal fatigue has helped me sleep better. Quitting coffee, stabilizing blood sugar, and meditation before bed have all helped me sleep better. If you have high night-time cortisol you might want to consider taking a supplement called Seriphos which can train your body to make less cortisol when it peaks (and in turn can help you sleep better).

      Good luck!

  • Caili says

    Hi Mickey, thanks so much for sharing your inspiring story and autoimmune information, recipes, etc! I have found it very encouraging, in my own healing process, living with the same Hashi diagnosis as you. I first discovered the AI protocol on your website, as I was scouring the internet for something that I knew was missing and feeling very unwell.

    After struggling with Hashi’s for nearly 10 years, I know this protocol is the crucial piece I have been missing and was beyond thrilled when I discovered your blog. I am seeing improvements already, although it has been a major struggle eliminating SO many foods that were once staples and getting my family on board is quite difficult! Coffee, nuts and eggs are the things I am really having a hard time giving up, but can’t wait to try more of your breakfast ideas and hoping bone broth will help replace my coffee eventually. I am curious if you would share who your naturopathic doctor is/was? I have always seen conventional endocrinologist’s and want to try a more natural approach, vs. synthetic. I am also in WA state, if so please do share. Looking forward to utilizing your wealth of information, resources and upcoming book! Thanks again 🙂

    • Hey Caili!
      I am so glad you have found it helpful! The autoimmune protocol is amazing for deep healing and for finding out about food sensitivities. You may find that after an elimination period (30-60 days) you might be able to tolerate those foods again – I think nuts, seeds and egg yolks are pretty high on the list of possibly tolerable, but not egg whites or nightshades, unfortunately. You never know though, everyone is different!

      I see Dr. Stretch at the Institute of Complimentary Medicine here in Seattle. She is a great old fashioned naturopath, not trained in Dr. Kharazzian’s methods or anything but I really like her approach for natural thyroid treatment and adrenal fatigue. She does lots of testing and has a gentle process. She also lets me collaborate on my care and come up with ideas, which I really value. I know she doesn’t take a lot of new clients, so you may have to wait a couple of months for an appointment, but I highly recommend her 🙂

      Mickey

  • […] great that I was finally open to the idea of changing my diet. As I have written about at length in this post, when I started eating meat again I recovered very quickly in a lot of areas – it only took a few […]

  • Jaimie says

    Thanks for sharing your story. Like you, I’ve gone through numerous challenges with Hashimoto’s disease and every time I start feeling better I end up crashing again. I switched to a gluten free diet a couple years ago and it made a huge difference but not enough. Even with that change my good days are really just ‘less bad’ days. I recently stumbled upon the Paleo diet. and the more I read the more I realized that gluten may not be the only thing effecting my body. Yesterday I listened to the episode of The Paleo View that you were on and it gave me even more hope to hear about the Autoimmune Protocol. I made an appointment with my doctor on Monday to review everything before I dive in but after reading your story I’m so hopeful that this might be the key that I’ve been missing. No food in the world is worth feeling like a depressed zombie and I’m ready to face whatever challenges this dietary change may come with if there’s hope that I can feel normal again. I really appreciate all the work you’ve done compiling all of the information and I will definitely be ordering your book. It’s so much less daunting knowing that I have such great resources to help me along the way. Thanks again!

    • Mickey says

      Thank you Jamie! It sounds like you are on the right track – I would suggest to recognize that healing is a process, and rarely a new discovery is “the final piece of the puzzle”. While I believe that diet is huge, a lot of my success came from finding the right doctor and dealing with adrenal fatigue, gut pathogens, and making lifestyle modifications.

      I wish you success on your journey, and do check in and let me know how it goes for you!

  • Michelle says

    Aloha Mickey…Have you had many people with RA try this protocol? I’ve had Juvenile RA for 41 years since the age of 5. I am working with a homeopath in New Zealand.

    • Mickey says

      Hi Michelle,
      Yes, many with RA have tried the protocol, with mixed success. I would definitely suggest trying it! Let me know how it goes.

      Mickey

  • Brenda says

    Hi, you briefly mentioned that you looked into the GAPS diet- what was your experience with that and how does it compare with the autoimmune paleo diet? Thanks

    • Mickey says

      Hi Brenda,
      The GAPS diet is not specific for autoimmune – I implemented AIP with a GAPS-like approach (lots of bone broth, ferments, etc). I do not recommend adding in eggs, dairy and nuts as soon as they allow on GAPS.

  • Erin says

    I just read all of your my story posts in one hit. It relates so much to me, I want to thank you for sharing. I started the GAPS diet three weeks ago tomorrow coming from a raw, vegan diet. My energy levels have soared but my sleep and digestion are all over the joint. Can I ask- how did you trial and find your your sensitivity to eggs? This is the one food item I haven’t considered to be causing me issues and is central to GAPS!

    • Mickey says

      Erin, what a transition! You might want to look into supplementing HCL if you are having trouble digesting animal foods. I left out eggs initially because of the research, not because I had a very clear reaction to them. I later found, with reintroduction that if I ate them too often my autoimmune symptoms would slowly return. I would also say if you have an autoimmune condition and are on GAPS, I would be careful about reintroducing nightshades, nuts and dairy. A combined approach works well, but I find that the introductions of non-AIP items come far too soon in that protocol. Hope it helps!

      • Erin says

        Thank you kindly for your response Mickey. GAPS does recommend HCL, not that I am using it, however am using quality digestive enzymes. Perhaps I will look into HCL then. As far as I know I don’t have an autoimmune disease, but my mum and her brother have battled with severe Chrones their whole life. I am very sensitive to tomatoes and capsicum- I get very bad stomach pains- so I do know nightshades aren’t for me. I also get very tired after eating nuts and haven’t had dairy for years more from a health point of view, hence I supported the hard copy version of your book as I’m pretty much following your protocol! Can I ask- is cacao okay? I know cocoa isn’t. Thank you for a wonderful website and advice. I hope we can get your book published soon! There’s something about hard cover that I can’t go past. xx

  • timfm says

    Hi Mickey,

    Amazing story. I’m struggling with Hashi’s. Been through all the T4 meds. Switched Dr. and now on WP Thyroid (Westhroid Pure), but have read from a few sources that the TPO enzyme in porcine thyroid mat worsen the autoimmune attack, i.e., increase antibodies. I’ll be testing TPO & Tg soon. What’s been your experience with antibodies and Thyroid USP? Also, check out Dr. Wentz’s new book (https://www.amazon.com/Hashimotos-Thyroiditis-Lifestyle-Interventions-Treating/dp/0615825796). She put her Hashi’s into remission with lifestyle changes!

    • timfm says

      “may” worsen

    • Mickey says

      Hi Tim,
      I was on porcine thyroid, and while it made me feel better initially, it started not working as well. My doctor gave me that same explanation about it increasing antibodies in some people. I switched to compounded synthetic, and have been happy and steady on the same dose for over a year. We are all unique, and have to find what works for our particular bodies 🙂

      I have heard of Izabella Wentz, you can read my review of her book here: https://autoimmune-paleo.com/hashimotos-root-cause-book-review/

      Mickey

  • Thanks, Mickey, for the great information. Quick question: HCL hurt my stomach. Would digestive enzymes be a good alternative (amylase, protease, lypase, etc.)?
    Cheers!

    • Mickey says

      Hi Gwendolyn,
      You might want to work with a practitioner on that one – if the HCL is irritating, you may need to take some supplements or up your consumption of bone broth to repair the gut lining. Its definitely territory where I would want to work with someone who can get your whole history and make a recommendation – I’d check primaldocs.com and functionalmedicine.org.

  • Debby says

    Hi Mickey,

    I too have Hashimoto’s, Celiac and adrenal fatigue. Plus, multiple food allergies/sensitivities. I’m at a pretty discouraging point right now, having lost a few foods recently. Your story is giving my hope, thank you! One of my questions is, how did you pay to see the dr. when you weren’t working? My husband is unemployed, I am unable to work and may soon not be able to afford all the supplements that keep me going.
    I am basically doing AIP because my sensitivities forced me too. (yes, I am a bit stubborn!) I can’t seem to tolerate ferments, did you have any initial problems with them? Did you find that digestion improved as your thyroid/adrenal improved?
    And, finally, are there any functional doctors that take insurance? I just can’t afford their fees and adding more to our debt load is really stressing me out, I already feel like such a burden to my family.

    • Mickey says

      Hi Debby,
      Sorry to hear of your health issues and sensitivities. I’m happy my story gives you hope–that is why this blog is here!

      When I lost my job, I was not really “able” to pay to see the doctor–my husband and I went into a lot of debt. Fortunately he had a job, but it was nowhere near what we needed to pay our expenses plus my ever growing medical bills. I went to the hospital three times that fall, and the first they waived my bill because of financial need. After that scare, my grandparents heard I didn’t have insurance, so they all but forced me to get a crappy policy… which made hospital visits #2 and 3 waaaay more expensive. I then went down the wormhole of testing for serious AI conditions (because I wasn’t getting better… MS or Lupus were on the table). Once I had figured out that conventional medicine was not going to fix me, I had already spent over 10K that we didn’t have and I was just getting to see the good naturopath and learning about the supplements. We borrowed a little money, my husband worked his tail off, and we went into a lot of debt. It took me around 9 months to recover to the point where I could work again, and another year or two to pay everything off–I am not going to lie, it was super stressful.

      I don’t think you need to find a functional medicine doc to get better. I found a naturopath who was able to order the right thyroid labs and help me find the correct dose of medication I need, and she was covered by my insurance. Everything else (diet, lifestyle, further testing) I did on my own. I think a combination of having a doc who can help order labs and prescribe meds as well as doing your own research and healing on the side is going to produce the best effect for the lowest cost.

      Not tolerating ferments is a sign of histamine sensitivity, which I have experienced. I have the MTHFR mutation, which you might consider getting tested for.

      Also, another thing to know is that my healing was far more effective with FOOD than SUPPLEMENTS. If I could go back, I would have skipped buying the expensive supps and spent money on quality meat and seafood. Actually, liver is the food that single-handedly made me start to feel amazing, and even organic, grass-fed is around $3 a pound. I still eat it every week.

      Sending you hope and good thoughts Debbie. I hope you are able to find a way to enable your healing process and not be too much of a burden to your family.

      Mickey

  • Laura says

    Hi Mickey,
    Like you, I have hypothyroid issues and mine manifests itself as high blood pressure 200/120 sometimes and I am allergic to all blood pressure meds thankfully.. Like you, I also have NUMEROUS food allergies. At one point, my sensitivities were over 25 of the normal foods I ate. I also have IBS, both C and D. Leaky gut is most likely the culprit. PALEO-SCD has been a life saver, as has adding Coconut Kefir, digestive enzymes and Tropical Traditions gold label. Coconut oil. I also have to avoid all nightshades and I go to see an NAET certified Acupuncturist specializing in food allergies. I am down to 12 allergies because of her. Hang in there and keep at it. It will get better but we may need to be diligent to eat REAL food and avoid the junk for the rest of our lives.

  • J-Rad says

    It has been over two years since you have written on here. What is going on? I want to finish the story, but I’m afraid that something happened to you in the last two years.

    • Mickey says

      J-Rad,
      I’m really healthy–I haven’t had any autoimmune symptoms in over a year. I still have some issues with methylation/histamine, which I found out recently were from a genetic mutation. I’ll be posting about that soon. Cheers!

      Mickey

  • christa says

    Hi Mickey,
    Thank you for being so open and real about your situation and experiences. I have been going through so much and have been so frustrated with the lack of answers and addition of questions that I’ve received… I have had another sleepless night last night with similar symptoms you have mentioned, and have been very restricted in my eating. I am in the beginning phases of learning about autoimmune/hashi/celiac and must wait a few months to see the doctor again. His answer… I don’t know… 🙁 I tried to add myself to your subscription list, but it didn’t work. Could you please add me? I’m a newbie so still learning. I live on the east coast, otherwise I’d definitely schedule an appointment with you! I’ve joined various FB pages, but your site is wonderful! Thank you for your testimony… especially the passing out and asthmatic part. It gives me hope that there is an answer out there somewhere. Do you have an email address that I could ask a personal question about your symptoms?
    Thank you,
    C.

  • Bee says

    I’m new to this, coming from vegan diet. Can u post what a typical day of your diet looks like, for breakfast lunch and dinner?

    Also, do u plan on adding eggs in soon?

    I haven’t been able to find a good ND or functional med doc… Most dismiss my case as too complex and its been disheartening. I also have many bad genetics and wish I could find a doc that can take that into consideration, along with all my tests and imbalances. It’s hard to find a good doc. I’m in Georgia, if u happen to know of any good ones as a referral…. I’ve done extensive searches and haven’t had luck

    What do u recommend to heal a low thyroid (low t3) and dysbiosis with chronic constipation? Did iodine help u? How did u address the methylation/mthfr issues?

    • Mickey says

      Bee, I usually eat a meat patty with veggies sauteed in lard or coconut oil for breakfast, a salad with leftover protein or fish for lunch, and usually something hearty like a soup, stew or braise with meat for dinner. Snacks I usually do pate and veg crackers and occasionally I will have some fruit.

      I tolerate eggs (have been for a year) but I don’t eat them very often because I know the science of how they affect leaky gut, and I have been pretty stressed lately. I save them for special occasions or when I am on vacation.

      I hope you are able to find a good doc soon. My only advice is to find a local networking group and keep searching. Sometimes you can find a doc that is ok but not amazing, and roll with it (that is what I did).

      If you have low thyroid hormone, you may need a prescription. Diet can’t solve everything, especially if you have had an attack on your thyroid for a long time. I take synthetic compounded medication and it is one of the factors keeping me healthy.

      For constipation, some people find that magnesium helps. Iodine was a disaster for me. I addressed MTHFR with supplements.

      Good luck!

      Mickey

  • shannon says

    Hi Mickey,

    I just read you addressed your MTHFR with supplements.

    I did not mention that I tested positive for the A1298C MTHFR mutation in my earlier email.

    what supplements do you take? I have started on a sublingual B12 but that’s it.

    thank you!!!

    • Mickey says

      Hi Shannon, I can’t advise on supplementation for MTHFR because it is very tricky, most of the time it depends on other mutations in the methylation pathway as well. I do know that the A1298C does not cause as much impairment to the enzyme as the C677T variation does. I would suggest enlisting the help of a practitioner who is knowledgable about MTHFR to help you with this.

      Good luck!

      Mickey

  • Holly says

    Thank you so much for sharing your story. It is so helpful hearing your journey and curious if you wouldn’t mind sharing the Dr’s you like in the Seattle area.
    I had Graves’ disease at 12, radio iodine given and have been hypothyroid for 22 yrs. I was vegetarian and raw the majority of my life and discovered I was celiac a year ago. My body was fatigued and completely in the toilet.
    I committed to a paleo diet and immersed myself in a world of healing, learning and biohacking..
    I have healed immensely but am still off.
    I am going to ask my NP to run a cortisol and neurotransmitter test. Do you reccomend any others?

    Thank you so much!!!
    Holly

    • Mickey says

      Hi Holly!

      Have you heard of the PNW AIP group? It is an awesome place to share resources/info about docs, etc. I see Dr. Stretch at the Institute of Complimentary medicine and like her approach on thyroid a lot. She isn’t specifically Paleo-friendly but she is great at ordering the right labs and very open-minded about medication (we had to try a lot of things before figuring out what works for me).

      Here is the link to the group, perhaps you can join us! https://www.facebook.com/groups/461640397265313/

      Mickey

  • Helen says

    I have just read your story and how you were able to heal yourself… I am in the process of doing this and it gives me great encouragement… Thanks Helen

  • Helene says

    Hi Mickey,
    Very interesting story. Shift work, sleep deprivation (f/t work and f/t studying) and coffee (up to 4.5 liters a day when I was 18-20, which gave me arrhythmia) really did it for me too, on several occasions.
    I really wish I could hire you as a cook! Eating paleo is great, but it is expensivish (I have to shop around to get the best deals, and hop to the supermarket several evenings a week to get marked down fish/meat/vegs) and really quite time consuming. I have a slow cooker, which helps a lot (bulk cook several portions and freeze), but I have often thought that if I were not living on my own (i.e. had a husband and kids, or even worse, growing teenagers), I would need to hire a p/t cook like you! All that time chopping onions, peeling carrots, and ‘melting’ said onions or browning meat before putting it in the slow cooker… Or eat at the restaurant 🙂

  • Eileen Forester says

    Hello, I have SLE (Lupus)/Thyroid disease. How strict do I have to be? Is it OK to have a glass of wine/piece of chocolate once a month – or its of paramount important to have NO CHEATS!
    Thanks,
    Eileen

    • Mickey says

      Hi Eileen, no cheats while on the elimination diet, but once you uncover your food sensitivities and know your limits, you will have a better sense of how often you can have those things. After a couple of years eating this way, I now drink occasionally, although chocolate gives me breakouts and I usually avoid it. Good luck!

      Mickey

  • Laura says

    Hi Mickey,

    It’s been refreshing to hear your story from an “ex-vegan” perspective. To make a long story short, I am celiac (but not confirmed as I stopped eating wheat long before I was able to be tested, and now it will never show up on any test), and probably hasimotos (this is en route to being confirmed…). So basically, I have had symptoms and have done my own research enough to consistently cut out foods for the last 4 years of my life. But I have no “evidence” that I’m any of the above yet, so people often don’t believe me.

    Anyways, I say thanks because I have been so very good about what I eat for the last 4 years, obsessively understanding ingredients and what my reactions are. But about a year ago was when I noticed all grains were giving me problems, and that’s been my demise from the “celiac who eats lots of vegetable” diet. I literally could not figure out what I could eat. So I decided I needed to eat meat more, mostly out of desperation. I was never a full vegan or vegetarian even, I just try to be responsible about the amount of meat I eat. But now, with the Hashimoto’s verdict looming, I feel compelled to eat more meat than I am comfortable with (not to mention….It can get expensive for someone in school or supporting two people to eat responsibly sourced meats). So I am in this dilemma.

    Anyways, not sure where I’m going with this besides, thank you. I needed to hear this from a vegan. I think a lot of media out there on Paleo cheapens it, and the benefits it actually has to offer, and gives a perception of carnivalistic tendencies. I can’t help but think although the idea behind paleo is to eat responsible, grass fed, nutrient rich meat, there’s no way most paleo individuals eat quality meat. But I feel like it can be done right after reading your story. (I went crazy and added so very many paleo individuals on IG for awhile, but recently I just want to delete them all, kinda makes sick). It seems like the purpose behind the AIP paleo is the right place to be inspired.

    • Mickey says

      Thanks for your thoughts Laura. I agree with you that a lot of people focus on the macronutrient (protein, fat, carbs) rather than the quality. It can be hard to source meat that is ethically raised, grass-fed, and pastured (but not impossible!). A lot of the AI bloggers joke that we eat more vegetables than a vegetarian… personally, most of my diet consists of veggies and fat, with some meat a couple of times a day. When I was healing, I needed more meat, now I find that I crave the veggies more. I actually eat a lot of organ meat, so that I can eat less muscle meat (organ meat has so much more nutrition, and is incredibly affordable!) We all have our individual needs and tastes, and it is impossible to proclaim a one-size-fits all approach.

      Wishing you luck in your journey, and here is to hoping it isn’t Hashimoto’s!

      Mickey

  • Casey says

    I’m loving getting to know you through the blog! I struggle with many symptoms that are similar to the ones you mentioned, but I have no diagnoses. Looking forward to getting the book!

  • Candi says

    Thank you for sharing your story. I have graves hyperthyroid, but have similar symptoms such as the brain fog. That was my first symptom really. I was vegetarian for quite a while before getting diagnosed. I now eat meat and recently found out about a lot if food allergies. I have since eliminated the allergens and am on my lowest dose of thyroid medicine ever. I have a whole host of neurological symptoms that affect my vision and balance and they haven’t budge but have steadily gotten worse. I am going to purchase your book and pray that I get some positive results from the diet.
    Xo
    Candi

  • floral says

    Hi Mickey,
    I too was a low fat vegan, had emotional trauma, gained weight, excersise running daily, had too much coffee, my hair started falling out, had heart palpitations and blurred vision (just once).. This all happened during the past 6months. Before that i was healthy even though pescetarian. I Saw a doctor 2 months ago, and my tests were fine except for mineral and vitamin d deficiency. However, i think my symptoms sound alot like yours! What tests should i ask them to do? Any advice? 🙂 However i am now since 1 week on the AIP protocol. So far so good. Less swelling in the face. But swelling came back after eating green peas and onion and garlic. No more of that.

    • floral says

      And my supplements (iron and multimineral and vitamin) contains corn starch as a filler. I ‘n wondering whether corn starch will unable the gut to heal? Yesterday my face swelled up. I wasnt sure what caused it. Is asparagus not one of the allowed foods? 🙂 I’m glad we all found the Aip. Just sorry not sooner.

      • Mickey says

        Floral, yes corn starch is problematic. Can you find a new brand that does not contain this filler? Asparagus is fine for most, but many find that they have some trigger foods beyond the recommendations. Good luck!

        Mickey

    • Mickey says

      Hi Floral,
      I would recommend getting all your thyroid labs checked–free T3 and T4 in addition to TSH. Have them run TPO antibodies to see if you have Hashimoto’s (hope you don’t). Thanks for sharing and being here, and I hope you find some healing soon!

      Mickey

  • Katie says

    How long did it take for you to see improvements in your neuropathy? Did it gradually go away? Get worse before it got better? This is the most frustration part for me. Besides the fatigue… blah, how long did that take for you? I know it is different for everyone but I love to hear other people’s experience.

  • Margaux says

    Thank you for sharing your story. I appreciate the information you share as well as your resources/recommendations.

    I have had Hashimoto’s for 10 years and so do all the women in my family. I also have lichen planus, an autoimmune skin rash. This last month I started having issues with my digestive tract. I couldn’t describe it as anything other then “things just aren’t right.” Luckily my doctor recommended trying to go gluten free. I felt better immediately. As soon as I snuck a bite of my boyfriend’s pizza, I got sick all over again. I always felt that wheat may be a problem, but I shrugged it off instead of listening to my body.

    I am going to pick up your cook book next pay day. . . Thank you for what you do. It’s so nice to read everyone’s story and to know I am not alone.

    • Mickey says

      Margaux,
      I’m sorry to hear of your story, but I hope that you find healing information here. Good luck to you!

      Mickey

  • Stephanie Ewals says

    Thanks for sharing your story. I think I am on my way to finally doing AIP. I have had such a love affair with food over the years and am finally after 3 1/2 years to the point where I don’t really miss bread all that much. I have almost completely given up sugar as well. I am an NTP student (halfway done) and the stress is taking a toll on me. Had some gluten free bread twice this week and now have what I believe to be thrush. My only diagnosed autoimmune is Hashimoto’s which is what has lead me down the path to healing naturally. I appreciate your story and learning from you. My AIP journey is sure to come.

    • Mickey says

      Stephanie,
      Its possible to eat this way and still love food, I promise! I know how enticing the gluten free products are but honestly going grain-free is very important. Wishing you the best of luck on your journey!

      Mickey

  • Elaine says

    Hi Mickey,
    I’m so happy to have found your blog and I will be ordering your book for sure. After having hashimotos for the last 7 years, I ended up in a flare up last year. Without going in to all the details, in the last year I have been diagnosed with fibromyalgia, adrenal fatigue, vit d and b12 deficiency, fatty liver enzymes and next week I’m being tested for celiac disease (my 6 yr old daughter has celiac and the doc is pretty sure that I do also). I recently started AIP and it’s the only thing that has helped with my energy levels, mood and weight loss. I feel hopeful for the first time in 12 months. I feel inspired to keep going and pray that maybe one day I might return to my old self. I am trying very hard to work on my stress levels, which is difficult with 4 children but I’m taking it one day at a time. I know that my adrenals are still working in overdrive. Can you please advise what I should do in order to heal my adrenals. Thanks so much.
    Elaine

    • Mickey says

      Hi Elaine,
      My advice with adrenal fatigue is to do anything you can to change your lifestyle to prioritize sleep and rest. Don’t do anything that is too stressful, like an exhausting exercise routine, and really make sure you get a lot of sleep. Wishing you luck!

      Mickey

  • karen says

    Good day Mickey,
    I’m looking for vegan autoimmune recipes. Any advise on cookbooks or websites you can recommend.

    Thank you.
    Karen

    • Mickey says

      Hi Karen,
      Unfortunately the Autoimmune Protocol does not layer with a Vegan diet. It is possible to do the protocol only if one is willing to eat a lot of fish and shellfish to make up for the protein and nutrient needs while on the diet. I would check out Sarah Ballantyne’s book, The Paleo Approach for the scientific explanation of why this is the case. Wishing you luck,

      Mickey

  • Chloe from Aus says

    Hi Mickey,
    I thoroughly enjoyed reading your story, your blogs and your FB posts. Thank you so much for sharing your journey.
    I reluctantly started doing up some paleo meals and snacks as my partner was concerned about the amount of refined sugar in my diet. I have found recipes that I really love and use to when I have the urges to smash my face with lollies and chips.
    I even managed to expose friends and family to paleo recipes that they would have otherwise avoided. This is in no way meant to offend and please dont take it that way, but I would love to use some of the AIP recipes in your book in a non-AIP diet. I do not have the ability to follow AIP or paleo to the tea but love bringing healthy meals to the table when I am home. I believe that reducing refined foods and increasing fresh foods, even if it may not be to every meal, is better than nothing. Best of luck on your journey and thank you for letting me be part of the audience 🙂

    • Mickey says

      Chloe,
      Thanks for your message, and I do not find it offensive that you want to include my recipes in a non-AIP diet! Really, that is what I am after, creating food that ANYONE wants to eat that also happens to be allergen-free. I’m happy you are enjoying the recipes and wish you continued health on your journey 🙂

      Mickey

  • Natalie says

    Hi Mickey!

    Does green tea have the same negative effects on the body as coffee?

    • Mickey says

      Natalie,
      Green tea has some immune stimulating compounds, as well as caffeine, so some people do not do well with it (myself included) while others are fine. I would take it easy or eliminate all together until you know how it affects you.

      Hope it helps!

      Mickey

  • Jenny Peace says

    Hi Mickey I came from a long long way improving my health as I had lots of health issues and now I am on 21 days sugar detox and felt much better but still something is missing so could you pls recommend me a ND or practioner asap as I am going crazy with my brain going on recycle as I have diabetic, hastimo thyroid, many food allergies, candida, toe fungus, leaking gut, psorasis, memory loss so I really need help to get well fast cuz soon I will on process of divorice unforttualey. I need the name and phone # asap to make appt. Greatly appreicated for ur hard work on the new cookbook.

    • Mickey says

      Hi Jenny,
      I recommend checking out paleophysiciansnetwork.com or primaldocs.com to find a paleo-friendly practitioner in your area. I am also available for nutritional consulting at thepaleomomconsulting.com. Wishing you luck!

      Mickey

  • Christina says

    I also live in the Pacific Northwest and am dealing with adrenal fatigue. I would love to know who the practitioner is that you saw if you wouldn’t mind sharing. Still struggling to find all the pieces to my puzzle. So happy to have found your blog. Thanks for sharing your story.

  • Becky says

    Hi Mickey,

    Thank you kindly for sharing your story with us. I was diagnosed with Hashimoto’s two years ago and recently found out I am Coeliac, with very low Iron and B12. I have been vegan for 8 years, and with for my own health feel the Paleo diet is worth a go. I started eating fish a couple of weeks ago, and re-read above, I noticed you took HCL. If you don’t mind, would you be able to recommend a good brand of HCL (preferably available in the UK) or one that has worked for you?

    Thank you again for the time and energy you have put in to your site/book that has been able to inspire autoimmune sufferers like me.

    • Mickey says

      Hi Becky,
      There are many suitable brands of HCL, I would recommend looking for a capsule with betaine HCL and no other fillers. I’m happy you resonated with my story, and I wish you success on your journey!

      Mickey

  • Elissa says

    Thanks for sharing your story; very helpful. I’ve had auto-immune issues since being diagnosed with IBD in my 30s (and with allergies in my 20s that were a minor issue until recently). After surgery helped my IBD, I ignored the immune aspect until being diagnosed with Hasimoto’ s recently (I’m now in my 50s). I’ve also developed asthma that has gotten moderately severe 3 years ago. Two years ago, in hopes that it would help the asthma, I turned mostly vegan (vegan at home, vegetarian out, plus fish maybe once a month. It didn’t help the asthma, but it has led to a bit of weight loss and then weight stabilization, so I’ve been planning to remain vegan. The AIP has scary amounts of meat….I’ll go there if necessary, but first, I’m going to try the program in Susan Blum’ s immune system recovery plan, which is more vegan comparable, and see how that works for me. Since you are a former vegan, I’m wondering what percent of the recipes in your book are vegan-friendly?

    • Mickey says

      Hi Elissa,
      Since the AIP does focus on meat for getting those healing nutrients, it isn’t possible to do it vegan. I do have some recipes that are compatible though, especially if you cook with coconut oil instead of animal fat–maybe 30?

      Hope it helps!

      Mickey

  • Shan says

    Hi Mickey
    I have just finished reading your journey, thank you for sharing.
    I myself have had Ankylosing Spondilitis which although diagnosed 10 years ago (and having had it for 10 years prior) have ‘managed’ it through diclofenac, acupunture, pilates and staying active among a few other things. I have only ever had maximum of 3 days in the last 10 years where it might flare up. I am currently a breastfeeding mother of 2 children (4 & 5 months) and the last 4 weeks have seen my AS flare up in an unbelievable way, the pain and inflammation affecting every joint in my body. I have needed crutches to walk (when the pain isn’t in my wrists and knuckles as well) and it has been amazingly emotional and stressful not being able to carry and care for my baby and my 4 year old as I would usually. I have required nearly 24 hour assistance from my family who unfortunately live in another town and my husband is our only income provider yet has to help me out through bedtimes and night time feeds etc. I have put on Ibuprofen as the safest med to manage my pain from my rheumatologist, and although it seems to take the edge of (I am crutch free this week!) I am not enjoying that I am having to take anything whilst I still feed my baby.
    In my own research I have discovered your page and the Autoimmune Protocol and am really determined to get it underway. The only thing slightly holding me back is our limited budget allowing me to change over whats already in our cupboards and still having to feed my family (fussy eaters). So I although I am determined to make this work for me, it might be a challenge to introduce somethings to my family but where theres a will theres a way. 😉 I am thinking it might be a bit of compromise involved.
    My question is now you have been using this method of eating for a couple of years from what I can tell, are you any closer to feeling like a ‘normal person’ again? And have there been any more positive outcomes?
    I am nervous but desperate to make this change.

    • Mickey says

      Shan,
      I am so sorry to hear of your circumstance, that sounds incredibly trying. 🙁 I cannot imagine being in the position I was in, with children… oh dear.

      I am feeling really well these days. I’ve been “recovered” for almost a couple years now. I still have some small issues, but the healing deepens as time goes on.

      I’m sending you and your family positive vibes as you start this journey. <3 <3

      Mickey

  • Katerina says

    Hello from Australia 🙂 I read Sarah Ballantyne’s book earlier this year and am about to purchase your cookbook in hard copy. Thanks so much for sharing your journey. I too have Hashi’s (since 1998) and have been on a strict AIP for four months. I am also on porcine thyroid, made in a compounding chemist. Was diagnosed with adrenal fatigue a few years ago. Everything seems to be going well: sleep, digestion, energy levels, and for this I thank the protocol. But the skin on my chin is terrible. I typically get an inflamed pimple or two, regardless of which stage I am in my cycle. I am turning 41 and so frustrated, when I am so careful with diet, exercise, rest, etc. Mickey, do you have any insight into this. Thank you in advance.

    • Mickey says

      Katerina,
      I can imagine how frustrating that is–and really, I can’t offer advice without knowing more. Do you have a practitioner you can go to for hormonal testing? Sometimes it takes a skilled person to work with to correct imbalances if that is the source of your skin issue. Hoping you find healing soon!

      Mickey

  • kelly says

    Hey! I was just diagnosed with hashimoto’s but I really think I have adrenal fatigue as well. What tests should I ask my doctor to run? And what supplements should I look into? I’m starting the aip diet this week!

    • Mickey Trescott says

      Hi Kelly,
      Its important to get these thyroid labs run–TPO antibodies, free t3, free t4, and TSH at the minimum for every draw. I also find a salivary cortisol test helpful for those with adrenal issues. You need to work with someone who can take a history and make recommendations on the supplements, because everyone is different. Hope it helps!

  • […] Stay tuned for posts detailing my recovery, in parts I and II. […]

  • […] so I took the job, and my healing journey continued. Stay tuned for part II where I detail the final piece, how I got from there to where I am […]

  • Gretchen says

    Thanks so much for sharing your story. I am a vegan of 13 years and had a sudden onset of auto-immune issues (not sure yet how many). I can barely be on my feet for more than a minute, (my bones and joints ACHE), I had debilitating anxiety (that has mostly passed), Mom has had to fly out and take over kids and house, I’ve lost many many pounds that I didn’t have to lose and I’m absolutely terrified. I’ve started AIP, and I know you know how difficult that has been. I will do anything to be well again. Could you please share the name of the practitioner’s you saw that helped you, as I am 30 min outside Seattle?

    • Mickey Trescott says

      Hi Gretchen!
      I’m so sorry to hear your story–it pains me to say I know how you feel. Making that leap to AIP from vegan is very difficult! It took me a good 3-6 months to just START putting a dent in the nutrient deficiencies I had accrued by not eating animal products. Be patient and know that it takes time! Unfortunately, the doc I saw in Seattle has since retired. Have you checked out paleophysiciansnetwork.com or primaldocs.com?

      Wishing you the best!

  • Danielle says

    Wow, I just love your website. Thanks so much for sharing your story. I can relate to it so much. I have SIBO and the MTHFR gene and Hashimotos and calcified nodules on my thyroid. I am a vegetarian.

    It all started last year with bad heartburn and reflux. I would bend over to pick something up and would throw up. My chest was in so much pain. My rosacea got worse, I kept getting pains in my neck and spasms in my chest. Every time I would lift anything a little bit heavy I would not be able to move for days. Everything became an effort. I was running around in fight and flight mode all day. Only ever sleep a few hours each day. I am sensitive to sounds. One day after driving my daughter to school. On the way back home I had to pull over I had such blurred vision and couldn’t see. Went to the chemist and they checked my blood pressure. It was very high. Recorded it for 2 weeks a few times a day it was so bad. Anyway dr wanted to put me on medication. I refused. She gave me two months to lower it and to come back. I stopped salt, walked more, drank more water and ate more avocados. Difused vetiver pure essential oil to relax. Took tablets from nutrition care from the naturapath to assist with my sympathetic nervous system. Anyway went back to dr and she was amazed. She said I was out of the danger zone. My biomedical practitioner told me to take l carnisine. Peptic care. Amazing it helped.

    But I became more anxious and jumpy. I had a horrible sensation that someone was strangling my neck for a couple of years now but it was getting more intense. So told the dr this and she ordered an ultrasound and it showed up hashis. So had blood tests and it confirmed it. A few months after this I had no energy, brain fog. Some days I would walk around in a daze and everything was heavy. It hurt to carry my handbag. Some days I just couldn’t move. Have always had lots of energy at night. Sleep only a few hours ever night for a long time. I stopped working. I only worked part time. I tried to focus on my daughter more. She has Autism spectrum disorder. I thought stopping work would allow me to relax more. It did but I was not getting better.

    I went to the emergencey department of the hospital as I had intense crushing sensations in my chest. So bad I was in tears. They rushed me through and did all the tests. Everything checked out fine with my heart. That is when I realised I need to change what I eat. So with the help of another naturapath I have now been gluten and dairy and sugar free for almost 3 weeks. Amazing I have had no brain fog and no aches and pains and no strangling feeling.

    I have had swollen ankles and weight gain and hair loss and rosacea and blurred vission over the years and have always had a sensitive gut. I have been to drs and specialists and dermatologists but no one has ever really treated the cause only the symptoms. My naturapath and biomedical practitioner are amazing. I take vitamins and digestive enzymes and feel great at the moment.

    I think I have a long journey ahead of healing but I am so glad I have cut out the bad foods, well the ones which I think are bad for me. Am so excited I have come across your website and I will purchase your book and look forward to making the recipes. ☺

    • Mickey Trescott says

      Thank you for sharing your story Danielle, I am sorry for what you have been through. I’m hoping for a swift recovery! Take care.

  • Esther says

    How were you able to do a trial just for eggs to find out if you were reacting badly? I want to know how I can find out what it is I’m reacting badly to. It’s hard when you eat so many things. Thank you for sharing your story.

    • Mickey Trescott says

      Hi Esther! I did do a trial for eggs after I had done the elimination diet. Have you read The Paleo Approach by Sarah Ballantyne? She outlines the reintroduction process in incredible detail, and by following her method you can more easily tell when one food or another is affecting you. Good luck!

  • […] Also see her blog series on the topic here, here, here, here, and here. […]

  • Lynn says

    Hi Mickey,

    I too really want to see the light at the end of the tunnel! Can you tell me the name and contact number of the practitioner you worked with? I’m seen loads of doctors but can’t find a knowledgeable practitioner that understands Hashimotos and adrenal fatigue. I would be so grateful. You mentioned the practitioner in the quote below.

    Respectfully,

    Lynn

    ” I found a practitioner that was knowledgable on adrenal fatigue and trained by Dr. Kharrazian on Hashimoto’s disease. It was through this practitioner that I began to see the light at the end of the tunnel, and began my epic uphill battle back to good health.”

    • Mickey Trescott says

      Hi Lynn! I am sorry but the doctor I worked with in this phase of my healing process has since retired. I would encourage you to seek out the following resources to find someone to help you:

      primaldocs.com
      paleophysiciansnetwork.com
      hashimotosawareness.com
      thyroidpharmacist.com

      Hope it helps!

  • Meg says

    Hey Mickey,
    I’ve been following your story, and the AIP diet intermittently, for about 2 years now, and it has helped me immensely. I’ve always suspected an autoimmune issue because of my symptoms (fatigue, trembling, gastroparesis, low blood pressure, amenorrhea, food sensitivities, etc.), but haven’t been able to secure a diagnosis. I recently had a test result of TPO antibodies that were though the roof, and am trying to figure out where to go from here (my T3, T4, TSH, and CRP are normal). In your opinion, is this enough of a sign to pursue Hashimoto’s as a culprit? I’m sure there are lot of other tests I will need to be certain, and it may not be the only disease I’m working with. . .

    Any input would be greatly appreciated! Thank you

    • Mickey Trescott says

      Hi Meg! Most doctors consider positive TPO antibodies to indicate Hashimotos. When I was diagnosed, I was denied treatment and told my hormone levels were “normal” when in fact they were not in functional ranges. I’d do more research here, and possibly find another doctor who can take your symptoms into account and hopefully give you some help! Wishing you luck!

  • Alex DePaul says

    Hi Mickey,

    I saw you on Food As Medicine and then found your blog by accident while researching lectins and AIP. I don’t eat red meat because of animal cruelty and I don’t like the taste so the idea of going Paleo makes me anxious. I am blood type A and according to Dr Dadamo I can thrive on a vegetarian diet. Could you tell me your blood type? If you are type B or O, it would explain why not eating meat for 10 years was making you so sick. -Alex

    • Mickey Trescott says

      Hi Alex, I am A, and I don’t believe the blood type diet is accurate 🙂

  • Steph says

    Thanks for sharing your story, Mickey! I’m encouraged to hear that you ultimately found the cause of your symptoms, a supportive physician and a path to healing. I’m on my own journey to healing and have had some similar experiences (asthma as a teen, history as a vegetarian, doctors who tell me I’m fine despite concerning symptoms, multiple nutritional deficiencies). Glad to have found your website!

  • Lindsey says

    Hi Mickey,

    I found your podcast (linked from another site) prior to finding your website and felt some relief when you said you were diagnosed w/ celiacs and hashimotos at the same time. Except its not me its my 7yr old son. The dr. said we’d just watch his thyroid and treat when his TSH is abnormal, which doesn’t sit well w/ me. I feel like the info is so limited w/ adults I’m afraid him being only 7 will only make helping him more difficult. He has zero complaints and stumbled upon these AI disease by accident. He’s had Alopecia for a few yrs and w/ no answers we were going to go GF, but I decided to have a celiac panel drawn incase GF helped. I had no clue there was even a celiac gene (had I, I probably wouldn’t have tested b/c there is no family hx on either side of the family that we are aware of). The NP also suggested a full AI workup panel, and the rest is history. We are going paleo and will slowly phase to AIP hoping to keep any other autoimmune diseases away. My only concern is that he literally has never complained of any issues that are typical and common w/ celiacs or thyroid disease. How will I know what is affecting him if he doesn’t have any current complaints. Also, if you know any good resources that focus on children w/ thyroid disease or other AI diseases I’d love some recommendations either books or websites. Or any advice in which direction to go as oppose to just waiting for his thyroid to crap out. As a side note ALL of his labs (even his vit D) were normal, and he is a very active 7yr old. Thanks for this site and giving people hope!

    • Mickey Trescott says

      Hi Lindsey! I am so sorry to hear about your son, but it sounds like you are doing GREAT being proactive, getting him tested, and educating yourself about your options. This is such a huge piece! Honestly, with kids it is important not to be more restricted than absolutely necessary. I would suggest enlisting the help of a nutritionist who is familiar with AIP (I recommend my colleagues at thepaleomom.com/consulting) and working with kids to make sure he is getting all of the nutrients he needs (shouldn’t be hard unless he has specific food aversions, which sometimes is the case with kids!). If he doesn’t have a lot of symptoms, I might try a very strictly gluten/dairy/nightshade free protocol instead of full AIP for a little while and see what kind of mileage you get with symptoms and labwork, before trying the whole elimination diet. Unfortunately working with kids is new territory in the blogging community and I’m not aware of anyone writing about it yet, but I have met many parents at signings using the protocol with success for children (often modified and with close supervision). Wishing you luck, and hope you find some answers for him!

  • Michele says

    Hi Mickey, Thanks for all the hard work you do to help us Hashi patients. I have very similar trek as you although my journey has mercury exposure adding to my slow healing. I do have a question for you. How low have you been able to lower your thyroid antibodies to with switching to a compound medication and AIP diet. My antibodies were 380 but Im down to 140 with diet, and I take 2 grains of WP Thyroid my Dr wants to switch me to a compound med to see if I can lower more.
    Are you still considered Hash or just Hypo spectrum now?

    • Mickey Trescott says

      Hi Michele! My antibodies have gone down, but it is really hard to know exactly what did it – I suspect everything in concert, diet, stress reduction, sleep, and being medicated properly. I’ve personally done well on compounded medication, but I also know others who have had flares or not done as well. Since we are all individuals, you don’t really know until you try! This is why having an open-minded doctor to stay on top of things as you both tinker to find the right solution. I also don’t consider no antibodies remission or no longer Hashimoto’s – autoimmune disease is not curable and I believe using language like that gives people false hope. Hope it helps!

      Mickey

  • angela says

    Hi Mickey, I love your story. I can relate mainly because I have been a Vegetarian for 25 years! my motto is “nothing with a face or a family”!
    The thought of eating red meat makes physically want to vomit. I have been eating Morningstar Farms and Quorn products for years…now I hear no soy either?
    I have Hash, anemia, low b-12 and D, chronic pain/depression, MTHFR (which throws in another wrench!) I am addicted to sugar, and when i quit cold turkey i landed in the ER…thought i would die.
    I have learned that most people get well because they can afford to. One visit with a Functional med doc plus all the supplements broke me. Nor do i cook. How can afford to be on any of these diets? Or eat red meat? Which diet could ease me into this without causing me to crash and give up?
    thanks for being there to help us, when our doctors (oh, i mean the ones covered by insurance) dont help
    angela

    • Mickey Trescott says

      Hey Angela! I am sorry to hear about what you are experiencing and it really does remind me of what I went through in my journey. A couple things… first to take it slow. I regained my health over years, not weeks or even months, and every step felt small but when added together became quite an accomplishment. Second, transition to eating meat slowly. Try fish, shellfish, and fowl first. Some people don’t get to eating red meat, and this is OK – you can make AIP work for you only eating fish even, and better eating fowl (chicken and turkey). Learn all you can about cooking online, watch youtube videos, ask friends for help. Slow down, take it one step at a time, and focus on the things you CAN do and not the ones you can’t. Sending you healing vibes!

  • Lauren says

    Hi Mickey, thank you so much for sharing your story. There are so many parts of your story that resonate with me and that I feel are not frequently represented–primarily switching to AIP from veganism. Like a few others, I am struggling with the concept of switching to AIP after being vegan for nearly 8yrs. I had my full heart in my decision to become vegan years ago and eating this way has deeply resonated with my personhood and values. And yet, I’m trying to question myself and I am absolutely inspired by your story and others. Almost stereotypically, I have very low B12, iron and ferritin, folate, vitamin d, and yet I eat an extraordinarily health-focused diet (all organic, gluten free and very limited grains, soaking legumes etc etc) and also have been aggressively supplementing. Do you have any thoughts on what helped you leave that part of your identity behind and begin to see meat as food again? Honestly, straddling the vegan and paleo communities is such a lonely place to be! Thank you for your story.

    • Mickey Trescott says

      Hey Lauren! Gosh, there is so much I could say here… but really, what did it for me, was being bedridden and having zero options from my medical team when I was at my sickest. I would never have been motivated without that experience. Like you, Veganism really resonated with me, and I was doing all I could to manage with a healthy diet and aggressive supplementation. I always said I would never eat meat again, but honestly, there was a period where I thought either I could die from my illness, or I would be living the rest of my life in a near-death state and this woke me up to even just consider eating meat. I did a little trial, and what I experienced that evening after my first portion of red meat told me what I needed to know – that eating meat was essential to my biology, and that healing was what motivated me to start eating meat again long-term. I know this is a difficult space to be in, and I hope you don’t feel to alone Lauren! It is hard enough to navigate illness, but adding in a big ethical component can make things that much more difficult. Wishing you peace and health wherever your journey takes you.

  • Tayla says

    Hi Mickey. I just start AIP protocol but experiencing constipation because of no nut , seed, grain allowed. Is it common? Do you have any suggestion to overcome this issue. I ate a boat load of leafy green but still…

  • Bob G says

    Whoa. Just found your website whilst googling “hypochloridia” + “insomnia” (both of which I’ve Suffered from for over 10 yrs) … to see if there might be a connection between the two. Nothing (that’s nothing) helps me sleep except CBD oil, but I hate forcing sleep with any supplements. My hypochloridia is so bad that I have to take apple cider vinegar capsules, or betaine HCl, around 6 times a day, or I get terrible GERD. ACV capsules bring immediate relief to my hacking GERD cough, but it only lasts for a couple of hours.

    I read your article. Then I read more. Then I read it again. I have not eaten red meat 25 years. And 25 yrs ago I was a strict vegan. Then I graduated to vegetarian. Then I graduated to free-range eggs. Then a few years ago, free-range chicken. But still have stubbornly refused to eat red meat.

    After reading your article, I’m now gonna rush out and scarf some spare ribs, to see what happens.

  • Dear Mickey,
    Recently I had been introduced to the Autoimmune Wellness Podcast. While I make dinner, I listen to your podcast. I also just started your Autoimmune Wellness Protocol two weeks ago. I am desperate for health answers!
    Yesterday, I listened to your testimonial of how you found out that you had celiac disease. I had never heard of neurological celiac disease! While I was listening, I got to the part where you thought you were having a seizure. I stopped cooking and starting to cry! This is me!
    I have a long list of symptoms that doctors are stymied by! I have been tested for MS numerous times and it comes up negative. Dr. have repeatedly tested my thyroid, but it comes up low, but in normal range. I have had a biopsy for celiac, but it comes up negative. I have had every blood test that I know for Dr. to take; but nothing comes up out of the ordinary.
    I have lived with severe brain fog since I was a teen ager. I am fatigued continuously. I have been diagnosed with ADD. I have heat and cold intolerances. Coordination issues that keep me “tipping over” or bumping into things. My stomach is so distended that I am continuously getting tests. (My father died of pancreatic cancer, so I have this tested regularly.) (Among the list of other symptoms: osteopenia, arthritis, extremely painful muscles, joint pain, fatigue, inability to lose weight, difficult time falling asleep and staying asleep, infertility, history of miscarriage, hypoglycemia symptoms, endometriosis, nail bed infections…)
    I am an epileptic due to multiple seizures, but this is under control with medication at the present. Last year I had a three-day stint where neuropathy started in my legs, up through my chest and on the third day was in my face. This brought me to the ER and another regimen of nerve testing. At the end, they said I had peripheral neuropathy; but gave me no reason for it or nothing I could do to stop this. MS was again ruled out.
    My neurologist sent me to a nutritionist who worked through multiple diet issues with me; but in the end she said I am eating healthfully, but that she thought that I have malabsorption issue. She raised her hands saying she just didn’t know what to do with me. Once again, no plan of how to quell this issue.
    I have been working through my own health issues for over forty years! I am exhausted. Literally I wake up tired every day! I am so bloated I look like I am going to “deliver” any day now. I have a lot of the issues that are stated under the neurological celiac articles that I have read. I am at a loss! What steps do I take now? I really think I am on to something here, thanks to your personal testimony.
    I have been on a GF diet for years. This helps some, but not near enough to make me feel better. Recently I took out all grains. This also helps some but not everything. So now I am trying the Autoimmune Wellness Protocol. I really need help and wonder if you could help me know how to take intelligent steps to learn more about how to get help for neurological celiac. (I am sure that being GF isn’t the same care as a celiac would take in their eating and cooking.)
    My daughter has similar issues and together we have been trying to figure this out. My brother just started to have seizures and I am wondering if he also has this. There are many symptoms that make me think that this runs in our family. I am really feeling like your testimony is the answer to many a prayer!

    Blessings, Linda

    • Mickey Trescott says

      Linda,
      Thank you so much for sharing your story here, and I am so sorry for what you have been through! My experience with illness seems brief compared to what you are going through, and I can’t imagine your level of frustration. My suggestion would be if you can, look for an AIP Certified Coach (listing here – aipcertified.com) to help walk you through the elimination process – your case might be complex and having someone to help guide and keep you motivated could be super helpful. Wishing you and your family a full recovery!

      • Biraj says

        Hi Mickey!
        Your story is so inspirational. I have JIA (Juvenile idiopathic arthritis). I ‘ve had it ever since I was a teenager. I Have had a really difficult life. I have been on the AIP elimination phase for almost two months now. I had a full-fledged flare when I started the diet. I needed a strong painkiller every 3-4 days. After starting it, I have had one a few days ago after almost three weeks which is good. My mental focus has improved a little. My constipation is down. My stool used to be bad every day but it is much better now. I still have a lot of pain. I wish healing was faster. I still don’t feel as good as much as I should. I think it is because I am still on immunosuppressants. I feel deeply frustrated. How long did you take to go into remission after you started the AIP diet? It would be so great to know (I did read your story). Do you think there will be a gradual shift instead of speedy healing? Is it worth going to a naturopath?

        • Mickey Trescott says

          Hi Biraj! Sorry it took me so long to get to this comment, I am hoping you have continued to see the benefits of AIP. I completely know how it feels to wish that healing moved faster… it took me a few years before I really could even feel like my progress was truly sustainable. I hope you don’t feel any shame in being on medication still, as a lot of people need to combine diet and lifestyle measures with conventional medicine (I take thyroid medication every day and it is a major part of my feeling better). If you continue to feel like your progress is stalled or slow, I would definitely reach out to a practitioner who is familiar with AIP and can help guide you in some of the finer points of implementation, as well as help you advocate for yourself with your medical team. We have a big list of qualified folks over at http://aipcertified.com. Wishing you the luck in the New Year!

  • Alegria says

    No words can be enough to thank you for sharing your entire journey! I am truly blessed for have encountered your blog and then your story. I am in the beginning stage where I feel that I’m going to die and no diagnosis yet. I have an appointment scheduled with a naturopath that specializes in the thyroid and comes highly recommended. I have started a leaky gut diet/paleo and have seen an amazing improvement in 2 weeks. Now I know that it’s not only my thyroid, but also my adrenals. THANK YOU for all your tips, looking forward to being better prepared when I see my doctor and I don’t feel scared and fear anymore, mow I am on a mission and have full hope that I will HEAL and be able to have a normal life!
    I don’t have questions because you covered everything so well in your story and your detailed replies to everyone who leaves comments.

    If I may just share an experience, I stopped the salt because it would affect my thyroid, but then my adrenals would suffer and I would dehydrate. So I found the “water therapy” that made me increase my water to match my weight and I added enough Himalayan salt to my jug where it would not taste salty and it would nourish my adrenals.

    • Mickey Trescott says

      Alegria! Thank you for your kind comment and for sharing your experience with salt here. I’m happy you found my sharing helpful, and wishing you wellness on your journey!

  • Kourtney says

    Our stories are scary similar… from the horses (I work on a farm where my horse lives) to studying music in college (what I’m currently doing!) to the veganism. I suspect I have issues with histamine and I am so frustrated because I seem to have other sensitivities as well. My dietician doctors and family are frustrated. The Benadryl has only enabled me to binge on foods I am intolerant to.. coffee, dairy, nuts, processed crap, vanilla, cholcalte, anythingnwith cinnamon, legumes, wheat, soy, etc. It feels like regardless of what I do I don’t feel better. I am recovering from anorexia and bulimia and I hate that I don’t want to restrict to try and mitigate the urge the foods are off limits but now they have to be without swelling or mood swings, rashes. I eliminate them but go through withdrawals. I still eat some of the healthier stuff that has histamine like berries or Avocado but I do not do what to do because I am reacting to basically all fruit, spices, tons of vegetables, even carrots sweet potatoes, etc., all nuts, coconut (worst reactions), fish, most meat except chicken. And seeds and most oils. Basically it feels like food is killing me and I am killing my self with it. It’s so hard. I want to eat paleo because I feel it is the best way to eat but I can’t give up Splenda in my coffee and the addiction I have to foods I am intolerant to is real. I know that I must be feel worse I guess to feel better but I don’t feel like I have the support. I’m afraid of giving up my safety number because I am afraid of losing control, getting fatter, and not even feeling better. Anyway I like reading your blog and I hope maybe I can heal my intolerances as you have.

    • Mickey Trescott says

      Hi Kourtney! I’m so sorry to hear of your struggles. I would suggest with your history of disordered eating that you make sure you have a good therapist or other professional on your team to help you guide any elimination diet trial – this process can be especially tricky for those with a history or ongoing issue there. Wishing you luck on your journey!

      • Kourtney says

        Thanks Mickey! I do work with an RD but she is at a loss because I react to pretty much most foods I eat. It is so hard to separate the intolerances and allergies and what is eating disordered but after really reading quite a bit about various food allergies and intolerances, I am really believing that it may heavily contribute to my issues… dairy for example causing “highness” then aggression or anxiety for me in addition to edema… tomatoes making me angry and frustrated and not care about anything or anxiety some I can’t explain still but it seems connected. I keep contemplating “what if I fixed my intolerances… would it significantly improve my mental health in addition to my physical health and lessen the desire to have eating disorder symptoms?” It is frustrating though when for once you are logical about your body’s nd health and still disregarded by everyone because of your past, even though they admittedly have seen the physical symptoms.

  • M says

    Hi Mickey,

    I was wondering what test you took to confirm Celiac, you said you had antibodies off the chart?

    I took an antibody test (Anti-gliadin SIgA) which was very high. Is that enough to confirm Celiac/gluten intolerance?

    Thankful for help!

    • Mickey Trescott says

      Hi M! My antibodies were anti-transgluaminase. You’ll need to consult a doctor for more information on getting diagnosed based on your bloodwork. Many times they want to follow-up with an endoscopy to take a tissue sample too.

      • M says

        Ok, thank you for the information!

        The problem is that I get so sick when I eat even a tiny bit of gluten, that it’s hard now to go for further testing. I was hoping that the high anti-gliadin would be enough to say that I have celiac. Could there be another reason for the result? I’ve heard something about Candida causing high anti-gliadin levels due to the structure of the protein it creates is so similar. Do you know anything about it? That would mean it could ‘just’ be my (confirmed) Candida that mimics gluten intolerance… but then why would I react so strong to gluten then? I’m a bit confused as you might have noticed! 🙂

        • Mickey Trescott says

          Hi M! Unfortunately I’m not a doctor and I can’t explain those results for you… I am sorry! You will need to consult a practitioner that can take your history and interpret your result. I totally understand not wanting to eat any gluten if you get sick… the struggle is real!

  • Julie says

    Do you know of a naturopath well versed in endocrine issues and knowledgeable about natural thyroid medication in Colorado? Thanks!

  • Chantal says

    Hello Mickey,

    It’s amazing to hear your story. Three months ago – I was diagnosed with Graves Disease. It seemed like a death sentence. They tested my tots T3 – free T4 – TSH and antibodies – all indicating Graves. I have a iodine uptake test coming up that took 3 months to book. My doctor laughed at me when I suggested diet or alternative medicine. He told me I only have three options : ablation, meds or surgery. I’m so defeated. I don’t even know where to find a natural path who is educated and informed on this and who understands the nuances. I’m afraid I’ll pay so much money and they’ll just throw some lemon balm at me and usher me out the door. I’m trying so hard to eliminate things. Gluten is easy – but everything that is gluten free has soy or sesame or dairy or eggs. It’s like a vicious circle and I end up crashing and caving for a night on sweets I know are bad for me.

    But also – with foods taking longer than others to process within your body – I have no idea how to tell what I am allergic to. I don’t have any adverse side effects like rashes or hives or vomiting. So it’s difficult to know what is bad for me and what is not.

    I am hoping so much AIP can heal me and I can avoid the dreadful chemical infused meds. It’s such a strict diet and on a lower income it’s very difficult to buy the things I need. I haven’t even heard of adrenal fatigue and I thought I had read every article on the internet to date on my diagnosis. As far as treats, chocolate is my go to. Giddy YoYo’s raw chocolate to be exact. If I have to eliminate one more thing I might lose my mind -.-

    Wanting this to work so badly.

    What do you recommend ?

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